Chronic Tonic at VOTS- Looking For Emotional Rescue

Well, it's been one helluva week, eh? Much like the rest of the country we watched in horror here at chez triv as the events of last Friday unfolded and our hearts ached as we thought of our own boys aged eight and nine at their own elementary schools nearby. Then somebody on one of the 24/7 news-o-rama stations said it--the shooter was on the spectrum and Cleetus hollered, "Oh, hell no!" and turned off the teevee. We don't know exactly what's coming, but we suspect and we don't want to hear it, no. It goes right up at the top of our joint "fuck that" list.

For those of you who don't know our younger son is on the spectrum. High functioning, but on there and we've had somewhat of a struggle this year. So, all of a sudden whatever rank speculation that may happen between the the talking heads would feel very personal and we couldn't take it. Just seeing that picture of that kid when he was young damn near killed me. Buttons buttoned to the top, shy eyes peeking from beneath that fringe of bangs and almost a smile...oh.

I can only talk about my kid. Yeah, he's different, he processes information differently than we do and he has trouble verbalizing his thoughts, but he's getting better at it. The thing I've noticed is that he's like a sponge, he soaks up information and stimuli very easily. So, I've made it my business to make sure that his world is full of kindness, sharing, empathy--love. This is something you'd do with any child in the course of raising them, but with a kid who misses the social cues? Oh, it's a production.

And we're lucky. From the time we first suspected the whole family has been Team Dan all the way. I've never had to attend a meeting without Cleetus by my side, my parents opened their house to a team of therapists coming through for several years, his older brother relentlessly pursued every play strategy that was suggested and over the last six years Dan has progressed. Yes, we've hit some bumps, but we've also had his diagnosis upgraded each time he's been seen by that fancy doctor who thought he'd never have original speech.

So, my kid had some trouble last year. His anxiety was getting in the way of his progress, it was looking like they wanted him medicated and they brought in the big guns to back that up. They brought in a psychiatrist to see him and then talk to us about our options...hmm. A lot of different medications. I told her I would take it under advisement. What I did was take the four weeks between school letting out and his summer program starting to work with my kid. And I kept working with him and by the time I met with his one on one towards the end of his summer program she told me it was like working with a different kid. She wondered if I had medicated him. I told her that I understood that medicating a kid might be easier than working through anxiety, but we weren't ready to take that step.

We met with his teacher in November, she was full of praise, but I think she would still like to see him medicated, just to "turn down the noise in his head." I struggle with this. Truly I do. I know what she's saying, but if he is progressing and not unhappy I can't see it. For now, I can't put an eight year old boy on the type of drugs they're talking. So, we go along, taking each day as it comes and working for the best outcome and only hoping that tomorrow's Dan is a little better than yesterday's.

Then a national tragedy happens and you think your heart is broken until they announce on the teevee that the shooter was on the spectrum and you find out it can break just a little more.

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oh honey ...

NY brit expat's picture

there is a large clumsy woman reaching through the computer to hold and rock you for as long as you need. No one knows what happened this week ... but the concentration on the kid being on the spectrum has done nothing but stigmatise those on the spectrum, create more misunderstanding and get good and supportive parents to question themselves. Please do not let the media and the talking heads make more victims of wonderful parents and kids that are trying so damn hard and suffering already from being on the spectrum.

All we can do for our children is to love them, support them and teach them that they are valued and wonderful people. You and your whole family have been there for your son ... I hear your pain, I wish that I could be there to hug you ... my heart breaks hearing you doubt yourself and your family! Sending you love!

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thanks, I felt hesitant to even

triv33's picture

write about this, but on the other hand I figured I'm not alone here. There's a whole lot of parents out there that heard that come over the airwaves and just realized in that moment that, yes, they could feel worse.

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I have been talking to people

NY brit expat's picture

all week about this meme that has been spread by the media and so many of them have children that have any number of problems; I found myself telling people over and over again that this is false and that rather than being perpetrators of violence children and adults that have problems like this are more likely to be victims in a very harsh world, that they are trying to avoid the real issues of what happened this week, that they should not doubt themselves or stop doing their excellent work of love and support for their children. This is bordering on evil to spread such a harsh lie that makes parents doubt themselves, doubt their efforts and most importantly doubt their children. All to avoid talking about a society founded upon violence which is armed to the teeth ... the truth seems to be seen as far more dangerous than demonising kids on the autism spectrum and the parents that are working so hard and loving them so much. There have been so many things that have infuriated me this week, but this is so pernicious and so dangerous for parents and children and yet that does not stop them from making claims like this ...

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This makes me grateful

geomoo's picture

that I have avoided almost all coverage of this.  I have other reactions, too, about the need to prevent any seeming evil from being seen as part of society.  Identifying scapegoats is one of the easiest and most common ways to pretend the problems of human nature can be contained without the need for taking personal responsibility for one's own contibution to violence.  Soldiers must be seen as clean and heroic at all costs.

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the bbc coverage has been atrocious

NY brit expat's picture

disaster porn at its worst at times. Simply horrific ... but they concentrated on gun control, the comments about mental illness and violence have gotten less airplay here (as they do not have to rely on these hateful memes as there is no NRA or delusions about the wonder of modern weaponry over here). They interviewed the local haircutter who had nothing to say at all, who had no information about the situation, and just kept babbling ... Although there was some fun when some gun lover was speaker to a bbc reporter who compared the 2nd amendment to slavery and the woman just didn't understand what he was getting at ... you know, it was in the constitution, but you changed it. You can change the constitution ... gasp! Of course, this is a question of changing interpretation rather than the constitution itself, but let's not get lost in this discussion ...

I have been talking with people on fb as so many were repeating the dangerous and violent austism spectrum argument and others have been worried and feeling guilty although they have done nothing but support their children. So an awful thing to do to people .... worrying if children on the spectrum will not have even more problems at school due to this awful, pernicious reporting and the intensity of people's ignorance determining policy at all levels.

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Ah, this helps clarify what I wanted to say

geomoo's picture

It has to do with the delusion that there can be a nation of violent heroes who only use violence to make the world better.  This requires the assumption that every time human nature reveals itself, there must be a reason found to avoid the conclusion that violent impulses are not controllable or able to be harnessed for only good.  It is not that his family and community culture glorified violence and made shooting weapons seem normal--it is that this young man was like the "bad apples" who are blamed for every war crime.  The problem is mental illness, not violent human nature, so that there is no need for soul-searching our cultural and personal relationship to violence.

I could imagine the "coverage" all too well.  I knew I would not be able to tolerate it.

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thanks! i ran across that today and it's...

poligirl's picture

got links to some of the articles... some folks out there are making the case that the media is stupid. not that it takes a lot to make it, but the damage they're doing is very bad. it's like they don't think things through in the hurry to get the story out. they don't care if it's correct or what the consequences of it are... sigh...

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you're a parent, you will always worry about him

sartoris's picture

I have grown hyper aggitated at the narrative of this event which is portraying autism as mental illness.  Reporters should take the time to educate themselves on autism so that they can then educate the public on what autism is and what autism is not.  Asperger's is not mental illness.  What happened with this young man will never be known.  Why he killed will never be understood.  Blaming it on Asperger's is the height of laziness and ignorance.  Your son is blessed to have parents like you and your husband. 

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well, it's hard to argue that point when all services

triv33's picture

that your kid gets are billed to the mental health arm of the health insurance, so they see it as some form of mental illness, no? I've asked that question, I get no good answer aside from that's done that way because that's how it's done. So, it's not a mental illness? No. But the therapies that he needs are billed as therapies through mental health services? Yes. Why? Bcause that's how it's done.

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Would your careful strategies make for good tv?

geomoo's picture

Because if not, we're not likely to hear much about the value of "kindness, sharing, empathy--love".  People are interested in power and what it does, people are fascinated by violence, punishment, and blame.  These make good topics for television.  Who wants to consider such boring things as asking "How was your day today?" and waiting patiently for an answer.

The child who survived by playing dead was asked how the shooter looked.  "He looked like he was angry."  That seems to me the most pertinent description I have heard.  Has there been any discussion of the simple emotion of anger, and that almost every single one of us has imagined killing someone in anger?  Sure, most of us don't do it, but it's the same emotion.  Iow, things are at once simpler and more complicated than the entertainment-driven coverage suggests.  To be entertaining, television makes things grand and large, exciting and disturbing.  I expect the author's afternoons interacting with a child who needs it were none of those things--simple, direct, unexciting, small detail LOVE.

Until we stop expecting easy solutions which assume all our problems exist somewhere outside our common human nature, until we realize that what makes the vital difference in our lives is simple acts for which we recieve little recognition, we will continue to see societal dysfunction everywhere we turn, because the world really isn't the way it is depicted on television.

I guess I got on a little side track there.  I find your story touching.  Giving love to a child who needs it will have a much greater effect on our culture than any law.  We are suffering because simple parenting is looked upon as much less valuable than putting on a uniform and shooting people.  Because this is less valued, people are not receiving the support they need.  How many more shootings will result because families are too financially desperate to care for their children properly?  What will be the cost of that side effect of austerity?

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it's a strange but wonderful thing, to find you have to teach

triv33's picture

something on a different level. To explain a smile. To say,"Hey Dan, do you see Mom smiling at you? Do you feel that? You're smiling back, do you know why? Do you feel warm and nice and kinda happy inside? Mommy's smile did that, so you smiled back, isn't that cool? We just communicated with no words." And his smile turns into laughter.

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Beautiful and moving, triv

geomoo's picture

I truly don't want to be cruel to anyone's memory, but cause and effect is important.  Contrast that lesson with handing him a gun and telling him he might one day need to shoot someone with it.  Not that the two are mutually exclusive, but still, there is cause and effect.  I would guess without evidence that someone with asperger's, having fewer filters, is more likely to take what he is taught and face value and be less able to negotiate subtlety around when violence might be appropriate.  As the survivior said, he was "angry".  He may easily have felt that he had been taught that what you do when you're angry is shoot people.  Plenty of Americans seem to feel that way, even if they are unlikely to put it so bluntly.

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This tragedy Must Not be blamed on Asperger's Disorder

sartoris's picture

Unfortunately, the media may have already poisoned the public thinking on Asperger's.  It is very important to push back against the idea that autism caused this young man to commit this crime.  Anyone interested in learning more about Asperger's Disorder should visit the site dedicated exclusively to Asperger's. 

http://www.aspergers.com/index.html

 

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